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ESPE Working Group on Gender Dysphoria

The aim of the ESPE Working Group on Gender Dysphoria is to refine the clinical care and treatment of young people, to understand the global perspective and provide education and training for generalist and specialist practitioners.

 

Programme for the Annual Meeting Symposium in Vienna

The Annual Meeting Symposium for the Gender Dysphoria Working Group will take place on Thursday 19 September 2019 at 08:00-10:00 in Vienna, Austria.  

Programme for the 2019 Annual Meeting Symposium

 

Report on activities from 2018

We planned and submitted a research application in February and the final one in April 2018 with the purpose of establishing a gender dysphoria registry along the same platform as the i-DSD one and to link in with the ERN. WE also included a project to collect and process information about the growth of transgender children on hormone treatments and a prospective study in 8 European countries. This was not funded although scoring highly, and a reapplication is being considered in 2019.

Activities in 2019 include a WG symposium on joint surgical interventions and development of European treatment guidelines.

The WG symposium in Athens majored on non-binary gender identification and approaches to fertility preservation in transgender adolescents. The programme was attended by around 130 delegates.

ESPE Science Symposium

The WG planned the ESPE Science Symposium London in October 2018 over 1.5 days. This had a variety of international speakers covering basic science, biology and therapeutics. It was attended by around 100 delegates and feedback was excellent.

 

ESPE Science Symposium

Thursday 18 October 2018

1.00pm

Registration and light lunch

1.45pm

Introduction and welcome: Local team and Steering group

Exploring all the avenues in gender development

2.00pm

Genetic perspective - differences and similarities between gender dysphoria and sex development disorders

Dr Polly Carmichael, Gender Identity Development Service, The Tavistock and Portman NHS Foundation Trust, UK

2.30pm

Cognitive perspective - Physical brain maturation – the developing brain in puberty. Emotional and cognitive development, independence and autonomy

Professor Sarah-Jayne Blakemore, UCL Institute of Cognitive Neuroscience, UK

3.00pm

Questions and discussion

3.30pm

Refreshment break

4.00pm

Endocrine perspective - Pubertal development, sexual behaviour, gender identity and mental health in adolescence                

Professor Riittakerttu Kaltiala-Heino, Adolescent Psychiatry, University of Tampere, Finland

4.30pm

Emotional and social perspective – considering the relationships between gender identity, family functioning and associated mental health difficulties?

Dr Sarah Davidson with invited patients and participants, Gender Identity Development Service, The Tavistock and Portman NHS Foundation Trust, UK

5.00pm

Questions and discussion

5.15pm

Ethical dilemmas in transgender care for children and adolescents.

Introduction to case presentations and discussions

Professor Martine de Vries, Leiden University Medical Centre, Netherlands

5.30pm

Break and buffet tea

6.00pm

Ethical dilemmas in transgender care for children and adolescents.

Discussion groups.

Please contact us if you wish to present a case or scenario.

6.30pm

General discussion around case presentations and scenarios from delegates

7.30pm

Issues surrounding the participation of transgender athletes in sport

Professor Alan Rogol, Charlottesville, Virginia, USA

8.00pm

Close

Free evening, visits to local bars

Friday 19 October 2018

9.00

Arrival and refreshments

Gender and the Brain

9.15am

Exploring the neurobiology of gender dysphoria

Professor Nicos Skordis, Department of Paediatrics, University of Nicosia, Cyprus

9.45am

Patterns of development which may influence gender identity including autistic spectrum functioning

Dr Annelou de Vries, Centre for Expertise on Gender Dysphoria, Free University VU Medical Centre, Amsterdam, Netherlands

10.15am

Questions and discussion

10.45pm

Refreshment break 

11.00am

Influence of endogenous hormones on maturation - how do sex hormones affect gender expression in DSD and gender variance?

Dr Baudewijntje Kreukels, Centre for Expertise on Gender Dysphoria, Free University VU Medical Centre, Amsterdam, Netherlands

11.30am

Sex hormone manipulation and brain function

Dr Vibe Frokjaer, Department of Neurology, Rigshospitalet, Copenhagen, Denmark

12.00pm

Effect of pubertal blockade with GnRH analogues on neurocognitive function and physiological maturation

Professor Neil Evans, Institute of Biodiversity, Animal Health and Comparative Medicine, University of Glasgow, Scotland 

12.30pm

Questions and discussion

1.00pm

Lunch

Poster presentations from all student participants and delegates who wish to submit a poster

Pros and cons of endocrine treatment in gender dysphoria

2.00pm

Effects of GnRH analogues and cross-sex hormones on growth and puberty 

Professor Gary Butler, University College London Hospital and Gender Identity Development Service, The Tavistock and Portman NHS Foundation Trust, UK

2.30pm

Longer term outcome of cross-sex hormone treatment 

Dr Leighton Seal, Charing Cross Gender Dysphoria Clinic, UK

3.00pm

Questions and discussion

3.30pm

Refreshment break

3.45pm

Managing the pubertal axis in young people with gender dysphoria – how effective is it and what can be improved?

Prof Martine Cools, Paediatric and Adolescent Endocrinology, University Hospital Gent, Belgium

4.15pm

Risks of hormonal interventions in the short and long term - how is bone, cardiovascular health and cancer morbidity affected?

The adult perspective

Dr Alessandra Fisher, Department of Experimental, Clinical and Biomedical Sciences, Careggi University Hospital, Italy

The child and adolescent perspective

Dr Sabine Hannema, Leiden University Medical Centre, Netherlands

5.00pm

Questions and discussion

5.15pm

Closing remarks

5.30pm

Close

7.15pm

Networking buffet dinner in Marriott Regent’s Park Hotel (included in registration fee)

(10 mins walk from the Tavistock Centre)

Planned activities for 2018-2019

  • Working Group Session at 57th Annual ESPE Meeting in Athens, Greece - 27-29 September 2018.
  • To publish the results of the Working Group Global Survey.
  • To host the 1st ESPE Science Symposium.
  • To establish a I-GD registry linking with the established DSD registry: to apply for a grant for this.
  • To establish more detailed clinical guidelines for subsections of this group eg. endocrine management of young people with non-binary gender identification.
  • To contribute to ESPE e-learning with a module on Gender Dysphoria.

For further information on the activities of this Working Group please contact the Coordinator Gary Butler at gary.butler@ucl.ac.uk 

 

Working Group Members 

Coordinator

Gary Butler

(UK)

Sabine Hannema

(Netherlands)

Martine de Vries

(The Netherlands)

Nicos Skordis

(Cyprus)

Katharina Main

(Denmark)