about-us.jpg

ESPE Working Group for Paediatric Endocrine Nurses

The aim of the Paediatric Endocrine Nurses Working Group is to foster leadership and an ongoing tradition of excellence in European paediatric endocrine nursing care.  

  • Develop tools and materials supporting paediatric endocrine nursing that can be disseminated internationally.
  • Employ evidence based approaches for developing, implementing and sharing best practices for paediatric endocrine nursing.
  • Provide continuing education and professional development for nurses in paediatric endocrinology.
  • Expand membership to share paediatric endocrine nursing best practices worldwide.
  • Promote coordinated interprofessional care for patients and families with endocrine conditions.

Programme for the Annual Meeting Symposium in Vienna

The Annual Meeting Symposium for the PENS Working Group took place on Friday 20 September 2019, 14:30-16:30 in Vienna, Austria.  

Programme for the 2019 Annual Meeting Symposium

  

Output from the Working Group in 2019

Edited Collections

S Llahana, C Follin, C Yedinak, A Grossman, M Keil & K Davies (2019) Advanced Practice Nursing in Endocrinology (Cham, Springer)

 

Chapters in Books

B Moore, A Whitehead & K Davies (2019) Short stature, growth hormone deficiency and primary IGF-1 deficiency (Chapter 2) pp.13 – 37 in: S Llahana, C Follin, C Yedinak, A Grossman, M Keil & K Davies (2019) Advanced Practice Nursing in Endocrinology (Cham, Springer)

 

K Davies (2019) Disorders of Sex Development (Chapter 3) pp.39 – 61 in: S Llahana, C Follin, C Yedinak, A Grossman, M Keil & K Davies (2019) Advanced Practice Nursing in Endocrinology (Cham, Springer)

 

C Yedinak & K Davies (2019) Dynamic Investigations and Diagnostic Testing Chapter 15 pp.277—

- 303 in: S Llahana, C Follin, C Yedinak, A Grossman, M Keil & K Davies (2019) Advanced Practice Nursing in Endocrinology (Cham, Springer)

 

K Davies (2017) Care of the child and young person with endocrine problems (Chapter 22) pp.330 – 349 in: O Price & J McAlinden Essentials of Nursing Children and Young People

Essentials of Nursing Children and Young People (2017) (Los Angeles, Sage)

 

Articles

K Davies (2019) The XY Female: Exploring care for adolescent girls with complete androgen insensitivity syndrome Comprehensive child and adolescent nursing Nov 21 pp.1-11

 

K Davies & A Dwyer (2019) Genetic competencies for effective endocrine nursing practice Journal of Pediatric Nursing Sept – Oct Vol.48 pp.127 - 128

 

A Casey, K Davies, S Langham, L Martin, E McNeill, P Musson, J Reid, L Rigby, Walker, M Whitehead, J Davies (2019) Competencies: An integrated career and competency framework for paediatric endocrine nurse specialists: 3rd Edition Royal College of Nursing

 

Conference Presentations

Polycystic Ovarian Syndrome: A case study – what happens next?

Invited Speaker

Springer Healthcare IME IMAGE meeting                         Bordeaux, France         2019

 

What’s new in CAH?

I Hughes & K Davies

Invited Speaker

European Society of Paediatric Endocrinology                  Vienna, Austria              2019

 

Diagnosis and Management of DSD in the United Kingdom

Invited Speaker

International Congress of Endocrinology                          Capetown, South Africa  2018

 

Diagnosis and Management of CAH in the United Kingdom

Oral Presentation (Abstract)

International Congress of Endocrinology                          Capetown, South Africa  2018

 

History taking – why is it so important? Graves’ Disease

Invited Speaker

Springer Healthcare IME IMAGE meeting                         Marseille, France            2018

 

Debate: This house believes that children with adrenal insufficiency (including CAH) need their own medicines

(Invited Speaker: 2nd Proposer)          

British Society of Paediatric Endocrinology & Diabetes                     Birmingham, UK                               2018      

 

 Publication (patient engagement): Dwyer AA, Smith N, Quinton R. Psychological aspects of congenital hypogonadotropic hypogonadism. Frontiers Endocrinol. 2019; 0:353. PMID: 31333578 DOI:10.3389/fendo.2019.00353.

 

Publication (competencies & practice): Davies K & Dwyer AA. Genetic competencies for effective pediatric endocrine nursing practice. J Pediatr Nurs. 2019; 48:127-128. PMID: 31409498 DOI:10.1016/j.pedn.2019.06.006.

 

Publication (competencies and practice): Maione L, Pala G, Bouvattier C, Trabado S, Papadakis G, Chanson P, Bouligand J, Dwyer AA, Maghnie M, Young J. Congenital hypogonadotropic hypogonadism/Kallmann Syndrome is associated with statural gain in both men and women: a monocentric study. Eur J Endocrinol. 2019; 182(2): 185-194. PMID: 31770102 DOI: 10.1530/EJE-19-0537.       

 

Publication (competencies & practice): 93.   Dwyer AA. Minipuberty: A primer for pediatric nurses. J Pediatr Nurs, 2019; PMID: 31874718 DOI: 10.1016/j.pedn.2019.10.012

 

Publication (competencies & practice): Dwyer AA & Haushild M. Transitional Care in Endocrinology. Transition from Pediatric to Adult Healthcare Services for Adolescents and  Young Adults with Long-term Conditions. Editors: Betz C. & Coyne I. Springer Nature, New York, NY, USA. 1st Edition (2019) DOI: 10.1007/978-3-030-23384-6_12

 

Presentation (competencies & practice): Patient engagement and co-creating solutions for unmet patient needs. A Dwyer. Symposium, 7th Radiz International Rare Disease Summer School. Warth Weiningen, Thurgau, Swizerland – July 2019

 

Presentation (competencies & practice): Innovations extending nursing’s reach in delivering genomic healthcare. A Dwyer & C Rutirasiri. Symposium, Annual Congress of the International Society of Nurses in Genetics (ISONG). San Antonio, TX, U.S.A. – November 2019

 

Presentation (patient engagement): Patient Meeting with HYPOHH (international patient organization for congenital hypogonadotropic hypogonadism/Kallmann syndrome). Chestnut Hill, MA. U.S.A. – October 2019

 

 

Care and follow up of girls with Turner syndrome in Northern Sweden

  1. Ernstsson & B. Kriström

Invited speaker

European Society of Paediatric Endocrinology                  Vienna, Austria              2019

 

 

For further information on the activities of this Working Group please contact the Coordinator Christine Derycke at derycke.christine@skynet.be

 

Working Group Members

Coordinator

Christine Derycke

(Belgium)

Vice coordinator

Andrew Dwyer

(USA)

Secretary

Kate Davies

(UK)

Christine Davies

(UK)

Amanda Whitehead

(UK)

Christine Desmond

(UK)

Paul Carruthers

(UK)

Clare Simpson

(UK)

Clare Gilbert

(UK)