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ESPE Working Group for Paediatric Endocrine Nurses

The aim of the Paediatric Endocrine Nurses Working Group is to foster leadership and an ongoing tradition of excellence in European paediatric endocrine nursing care.  

  • Develop tools and materials supporting paediatric endocrine nursing that can be disseminated internationally.
  • Employ evidence based approaches for developing, implementing and sharing best practices for paediatric endocrine nursing.
  • Provide continuing education and professional development for nurses in paediatric endocrinology.
  • Expand membership to share paediatric endocrine nursing best practices worldwide.
  • Promote coordinated interprofessional care for patients and families with endocrine conditions.

Report on activities from 2017

  • Developing a virtual empowerment toolkit for improving the care for rare disease patients. A Dwyer. Seminar, Genetic Medicine Service, Centre Hospitalier Universitaire Vaudois, Lausanne, Switzerland – January 2017.
  • Links between hypogonadism, the metabolic syndrome and type 2 diabetes. A Dwyer. Nursing Symposium ‘Diabetes meets endocrinology: Clinical overlap and seamless care’, 19th European Congress of Endocrinology. Lisbon, Portugal – May 2017.
  • Implication des patients par l’éducation thérapeutique pour encourager l’adhésion au traitement dans les maladies chroniques (Engaging patients for improved adherence in chronic conditions). A Dwyer. Conference, Medikationssicherheit: Förderung der Adhärenz bei Patienten (Medication Safety: Promoting Patient Adherence). Bern, Switzerland – June 2017.
  • Nurse navigator: transitional care of adolescents with endocrine disorders. A Dwyer. Working Group Session, International Pediatric Endocrinology. Washington D.C., USA – September 2017.
  • Prader-Willi syndrome: Case study and Multidisciplinary approach. C Derycke. Working Group Session, International Pediatric Endocrinology. Washington D.C., USA – September 2017.
  • Comprehensive patient care: Bullying and the paediatric endocrine patient. A Dwyer. Plenary Session. Insights into Managing growth for Endocrine Nurses (IMAGE). Toulouse, France – October 2017.
  • Acute and chroic adrenal disorders: Sick Day Rules. A Whyitehead. Breakout session, Insights into Managing growth for Endocrine Nurses (IMAGE). Toulouse, France – October 2017.
  • Acute and chronic adrenal disorders: Audit of Adrenal Function Tests. K Davies. Breakout session, Insights into Managing growth for Endocrine Nurses (IMAGE). Toulouse, France – October 2017.
  • CAH presenting as DSD. K Davies. Plenary Session, Insights into Managing growth for Endocrine Nurses (IMAGE). Toulouse, France – October 2017
  • Psychological bullying of children with short stature. C Derycke. Plenary Session, Insights into Managing growth for Endocrine Nurses (IMAGE). Toulouse, France – October 2017.

Planned activities for 2018-2019

  • Working Group Session at 57th Annual ESPE Meeting in Athens, Greece - 27-29 September 2018.
  • Collaborate with international organisations (PENS, CPEN/ICEP, ENSA) to endorse a position statement against bullying of paediatric endocrine patients (J Pediatr Nurs. 2018 Vol 38)
  • Engage with European Reference Network to identify targeted areas for nursing to contribute to care of rare disease patients in paediatric endocrinology (i.e. case management, therapeutic education, engagement with patient support groups)
  • At the Athens meeting, we will hold a formal vote to rank priority areas for developing evidence-based nursing guidelines/recommendations. Participants will be identified for a working group that will conduct a systematic literature review for the top-rated priority.
  • Encourage and solicit nurses working in paediatric endocrinology to submit abstracts to the ESPE meeting.
  • Collect current resource materials (PENS, CPEN/ICEP, ENSA) and adapt/translate/validate for a European context. Disseminate to nurses via the ESPE website.
  • Engage with Austrian nursing organisations to identify nurses working in paediatric endocrinology to attend the Vienna meeting.
  • Recruit new attendees for ongoing ESPEN participation. Planned retention activities will involve including new members in committee work and mentoring members for ESPE abstract/poster submissions.
  • Present findings of the systematic literature review and progress towards evidence-based ESPEN nursing guidelines/recommendations.

For further information on the activities of this Working Group please contact the Coordinator Christine Derycke at derycke.christine@skynet.be

 

Working Group Members

Coordinator

Christine Derycke

(Belgium)

Vice coordinator

Andrew Dwyer

(USA)

Secretary

Kate Davies

(UK)

Christine Davies

(UK)

Amanda Whitehead

(UK)

Christine Desmond

(UK)

Paul Carruthers

(UK)

Clare Simpson

(UK)

Clare Gilbert

(UK)