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ESPE Working Group for Paediatric Endocrine Nurses

The aim of the Paediatric Endocrine Nurses Working Group is to foster leadership and an ongoing tradition of excellence in European paediatric endocrine nursing care.  

  • Develop tools and materials supporting paediatric endocrine nursing that can be disseminated internationally.
  • Employ evidence based approaches for developing, implementing and sharing best practices for paediatric endocrine nursing.
  • Provide continuing education and professional development for nurses in paediatric endocrinology.
  • Expand membership to share paediatric endocrine nursing best practices worldwide.
  • Promote coordinated interprofessional care for patients and families with endocrine conditions.

Report on activities from 2018

  1. Dutch Endocrine Meeting (Liesbeth Lambrechts)kenner of nursing working group , Januari 2018

 

  1. Publication (endorsed by ESPE Nurses Group): Cohen SS & Dwyer AA. PENS Position Statement on Bullying Prevention. J Ped Nurs. 2018. pii: S0882-5963(17)30677-2. doi: 10.1016/j.pedn.2017.12.007 – February 2018

 

  1. Grant Submission (Kate Davies & Andrew Dwyer): PENS Multicenter Grant ($90,000 USD), “INTERnational Study of Endocrine Care during Transition to adult-oriented care (INTERSECT)” – March 2018 (not funded)

 

  1. Workshop (Andrew Dwyer): PENS Position Paper on Bullying (Dwyer), Annual Meeting of the Pediatric Endocrinology Nursing Society, Bonita Springs, FL – May 2018

 

  1. Symposium (Kate Davies & Andrew Dwyer): Translating genetic literacy into pediatric endocrine nursing practice. Annual Meeting of the Pediatric Endocrinology Nursing Society. Bonita Springs, FL – May 2018

 

  1. Workshop (Christine Derycke): Cursus Adrenalnet, Amsterdam, NL - May 2018

 

  1. Publication (Andrew Dwyer): Dwyer AA & Pitteloud N. Transition of care from childhood to adulthood: Congenital hypogonadotropic hypogonadism. Endocrine Development: Transition of care from childhood to adulthood. Editors: Polak M. & Tourraine P. 2018;33:82-98. doi: 10.1159/000487527. – June 2018

 

  1. Publication: K Davies “Multiple Endocrine Neoplasia in Children and the Importance of Screening: Part 1”

        Journal of Pediatric Nursing 2018 July 1 (41)

 

  1. Workshop (Christine Derycke): Anthropometric Training, Nice, FR – August 2018

 

  1. Publication: K Davies “Multiple Endocrine Neoplasia in Children and the Importance of Screening: Part 2” Journal of Pediatric Nursing 2018 September (42)

 

  1. ESPE, Athens, GR – September 2018

 

  1. Meeting (Camilla Ernstsson & Christine Derycke): Advisory Board Nurses in pediatric endocrinology, Munich DE – October 2018

 

  1. Meeting (Liesbeth Lambrechts & Christine Derycke): The development of hypothalamic obesity in craniopharyngioma patients - Psychosocial development in survivors of childhood differentiated thyroid carcinoma, Utrech, BE – November 2018

 

  1. Workshop (Liesbeth Lambrechts):Cursus Adrenalnet, Utrecht ,NL November 2018

 

  1. Conference presentation (Chair and Invited Speaker) K Davies “History taking – why is it so important? Graves’ disease” Merck IMAGE meeting, Marseille, France, November 2018

 

  1. Conference debate (Invited Speaker, 2nd Proposer) K Davies “This house believes that children with adrenal insufficiency (including CAH) need their own medicines” BSPED, Birmingham UK, November 2018

 

  1. Conference presentation (Invited Speaker) K Davies “Diagnosis and Management of DSD in the United Kingdom” International Congress of Endocrinology,  Capetown, South Africa, December 2018

 

  1. Conference presentation (Oral presentation) K Davies “Diagnosis and Management of CAH in the United Kingdom”, International Congress of Endocrinology, Capetown, South Africa, December 2018

Planned activities for 2018-2019

  • Working Group Session at 57th Annual ESPE Meeting in Athens, Greece - 27-29 September 2018.
  • Collaborate with international organisations (PENS, CPEN/ICEP, ENSA) to endorse a position statement against bullying of paediatric endocrine patients (J Pediatr Nurs. 2018 Vol 38)
  • Engage with European Reference Network to identify targeted areas for nursing to contribute to care of rare disease patients in paediatric endocrinology (i.e. case management, therapeutic education, engagement with patient support groups)
  • At the Athens meeting, we will hold a formal vote to rank priority areas for developing evidence-based nursing guidelines/recommendations. Participants will be identified for a working group that will conduct a systematic literature review for the top-rated priority.
  • Encourage and solicit nurses working in paediatric endocrinology to submit abstracts to the ESPE meeting.
  • Collect current resource materials (PENS, CPEN/ICEP, ENSA) and adapt/translate/validate for a European context. Disseminate to nurses via the ESPE website.
  • Engage with Austrian nursing organisations to identify nurses working in paediatric endocrinology to attend the Vienna meeting.
  • Recruit new attendees for ongoing ESPEN participation. Planned retention activities will involve including new members in committee work and mentoring members for ESPE abstract/poster submissions.
  • Present findings of the systematic literature review and progress towards evidence-based ESPEN nursing guidelines/recommendations.

For further information on the activities of this Working Group please contact the Coordinator Christine Derycke at derycke.christine@skynet.be

 

Working Group Members

Coordinator

Christine Derycke

(Belgium)

Vice coordinator

Andrew Dwyer

(USA)

Secretary

Kate Davies

(UK)

Christine Davies

(UK)

Amanda Whitehead

(UK)

Christine Desmond

(UK)

Paul Carruthers

(UK)

Clare Simpson

(UK)

Clare Gilbert

(UK)