ESPE in collaboration with the European Society for Endocrinology (ESE) have worked together to establish a European Reference Network for Rare Endocrine Disorders (Endo-ERN). The objective of Endo-ERN and all European Reference Networks (ERNs) is to ensure that it is the medical knowledge and expertise that travel, rather than the patients.
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 countries that offer access to clinical experts for patient rare endocrine conditions.
Endo-ERN offers:
- Secure virtual consultations
- Rare disease registries (EuRRECa)
- Patient information endorsed by European Patient Advocacy Groups (ePAGs)
- Rare disease research & guidelines
- Training & Education
Newsletter
Register for the Endo-ERN newsletter to be kept up-to-date.
Board members
Chair paediatric endocrinology
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Olaf HiortLübeck, Germany
Chair adult endocrinology
Contact
If you are interested in any aspect of the Endo-ERN are advised to contact Olaf Hiort or Alberto Pereira.
