About

Individuals with differences/disorders of sex development (DSD) constitute a special group of persons with a diverse variety of conditions often comprising multi‐faceted medical and social challenges leading to increased requirements for interdisciplinary care needs.

In addition, due to the complexity of DSD, special educational programmes are needed for the range of professionals involved in the care of affected individuals and their families.

Aims

The Working Group on Differences of Sex Development aims to bring together basic scientists, clinical physicians, geneticists, laboratory specialists, specialised psychologists and members of the patient advocacy community to:

· Promote research with special attention to cross collaboration between basic and clinical aspects

· Disseminate information and promote education

· Guide development of standards for holistic care of patients with DSD

· Liaise with other networks, such as the European Reference Network on Rare Endocrine Conditions (EndoERN) and the International Registries for Rare Diseases Affecting Sex Development and Maturation (SDMRegistries.org) to collaborate on areas of mutual interest

Sessions and meetings

Working group composition

Coordinator
  • Angela Lucas-Herald

    Glasgow, United Kingdom

Members
  • Gonul Catli

    Istanbul, Turkey

  • Jan Idkowiak

    Birmingham, United Kingdom

  • Katja Dumic Kubat

    Zagreb, Croatia

  • Nadine Hornig

    Kiel, Germany

  • Rade Vukovic

    Belgrade, Serbia

  • Rasha Hamza

    Cairo, Egypt